Thank you for sharing your story. I just read Unfit Parent by Jessica Slice who suffers from POTS. Her's was brought on by severe dehydration after an incident on a hiking trail in Greece. I definitely think we need much more awareness about Concussions and POTS.
Melissa, thank you so much for sharing your story. I had a major concussion in 2019 and still feel like I have after effects that I never dealt with. I've never seen a PT, only a neurologist - twice.
I didn't get the right continuous care I needed, and I'm paying for it now. Any advice?
Ask your neurologist for a PT referral, and go through the battery of evals to see if there are systems still affected. Could be vestibular, vision, cognitive… a good evaluation from someone experienced with TBI would be a good place to start.
Will you explain the “bonk” symptom more in part 2?
Thank you so much for sharing this story. I have similar symptoms but haven’t had much luck with trad med and my PT has helped with maybe 80% of it but I feel like Im just managing symptoms and not getting to the root of things.
To “bonk” typically means to run out of glucose (fuel) during a race, leaving you exhausted and struggling. I felt that on the trail to a degree I never had, for two hikes in a row. The first time I assumed I needed to eat more carbs, but the second time I was fully fueled and wasn’t sure I’d be able to go all the way to the summit. My brain was struggling to get energy, and I suspect the dysautonomia was messing with my blood pressure, leading to feeling faint and dragging.
I have never experienced this but, wow, what a helpful post! I'm always amazed at your generosity.
Hi there,
Thank you for sharing your story. I just read Unfit Parent by Jessica Slice who suffers from POTS. Her's was brought on by severe dehydration after an incident on a hiking trail in Greece. I definitely think we need much more awareness about Concussions and POTS.
Hope you continue to improve.
Carol
I agree. It’s a misdiagnosed and often under-diagnosed condition often written off as stress of anxiety.
Melissa, thank you so much for sharing your story. I had a major concussion in 2019 and still feel like I have after effects that I never dealt with. I've never seen a PT, only a neurologist - twice.
I didn't get the right continuous care I needed, and I'm paying for it now. Any advice?
Ask your neurologist for a PT referral, and go through the battery of evals to see if there are systems still affected. Could be vestibular, vision, cognitive… a good evaluation from someone experienced with TBI would be a good place to start.
Will you explain the “bonk” symptom more in part 2?
Thank you so much for sharing this story. I have similar symptoms but haven’t had much luck with trad med and my PT has helped with maybe 80% of it but I feel like Im just managing symptoms and not getting to the root of things.
I’m curious if your “bonk” is like my “jolt”.
To “bonk” typically means to run out of glucose (fuel) during a race, leaving you exhausted and struggling. I felt that on the trail to a degree I never had, for two hikes in a row. The first time I assumed I needed to eat more carbs, but the second time I was fully fueled and wasn’t sure I’d be able to go all the way to the summit. My brain was struggling to get energy, and I suspect the dysautonomia was messing with my blood pressure, leading to feeling faint and dragging.